disability advocacy | Rare Ladies

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Two people in motorized wheelchairs are seen from behind, positioned on a paved walkway beside a waterfront. The person on the left wears a pink shirt, a black hat and a small pink backpack, while the second person is clad in dark clothing. Both individuals are facing away from the camera, giving a full view of their chairs. The walkway has a brick pattern. To the right, a black metal railing with wooden posts borders a body of water. In the background are trees, buildings, and a tall skyscraper under a slightly overcast sky. The lighting suggests a bright day. The composition has a shallow depth of field, with the subjects in focus and the background slightly blurred.

Two people in motorized wheelchairs are seen from behind, positioned on a paved walkway beside a waterfront. The person on the left wears a pink shirt, a black hat and a small pink backpack, while the second person is clad in dark clothing. Both individuals are facing away from the camera, giving a full view of their chairs. The walkway has a brick pattern. To the right, a black metal railing with wooden posts borders a body of water. In the background are trees, buildings, and a tall skyscraper under a slightly overcast sky. The lighting suggests a bright day. The composition has a shallow depth of field, with the subjects in focus and the background slightly blurred.

Where’s Our PTO? We Clock In Every Day, and We’re Still Seen as ‘Inspiring’

No PTO. No breaks. No clocking out. Avery Roberts opens up about the real work of living with a rare disease in an inaccessible world.

Avery Roberts

Oct 253 min read

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